This
page is from a collection of materials
indexed at this website arising from an
investigation and campaign by Brian Deer in The Sunday
Times of London over serious risks and
side-effects from this antibiotic,
marketed under many names, including Bactrim,
Bactrim DS, Sulfatrim, SMZ/TMP, Septran,
Septrin, Septra, Septra DS and co-trimoxazole.
Go to side-effects
homepage
Below is page 29 of a
selection of mail to this website. If you
want to read of bad experiences, start
with selected letters to The Sunday Times
at this link. Most users have
no problems, but feel free to share your own
experience, which may help others. Please
note that Brian Deer is a journalist and
that this site has many visitors. Due to
pressure of work, posting of emails may
be delayed
|
BACTRIM:
4 December 2007
In February
2007 my 6 year old son took Bactrim for an ear
infection. When I told the ENT doctor that I was
allergic to Sulfa and was worried my son would
be, he said that he probably wouldn't and most
people don't experience a reaction to it unless
they take it more than the 10 days prescribed. On
day nine I noticed a small rash on his neck and
then upon further investigation noticed it on his
trunk. Called my pediatrician (not the ENT) - the
nurse said to keep taking the medicine (which I
did NOT give to him again) and try Benedryl and
if it gets worse call back. The next morning he
was covered in red splotches- his face was
covered and his trunk (see attached photo). I
took him in and the doctor said it was the worst
case she'd seen. She had to give him a weeks
course of steroids to clear it up.
My reaction
was in adulthood before I had my son and
overnight I developed a swollen throat and
dramatically swollen lips and an instant vaginal
yeast infection. After reading on this site back
in February and recently hearing of a horrible
case in my hometown I will NEVER let anyone in my
family take this drug. Doctors should be made to
warn people of the allergic side effects to this
before prescribing it since it has happened to
this many people. Thanks for your site!
Sherry,
Atlanta, GA
BACTRIM:
6 December 2007
Hi,
I was
recently prescribed Bactrim because I had
contracted MRSA, methicillin resistant
staphylococcus aureus. I began taking it on
November 25, 2007. Within a day, my staph
infection had markedly improved. I was happy that
the drug was working. I did, however, notice some
side effects which I attributed to stress. I was
having hot and cold flashes and becoming dizzy
and lightheaded. By the end of the week, I
noticed that my upper body had begun to swell and
my face was very puffy. I was in the midst of
preparing for my daughter s wedding, which took
place on December 1st.
By November
30th, my face was flushed and I had a rash
developing. I began having strange muscular
twitches and jerking. I wrote this off to stress
as well. The day of the wedding my upper body was
so bloated, it felt like I was trying to fit
Dolly Parton s breasts into my bra. The straps
were cutting into my shoulders, I was miserable
and wondering what on earth was going on. I had a
couple experiences that were similar to panic
attacks that day as if my body was panicking,
without my mind being involved. The day after the
wedding, December 2, I was worse. I could not
sleep and kept feeling cold. That night, I began
to itch. Pictures from the wedding show that my
face was so red and puffy, I didn t even resemble
myself.
December 3rd
I awoke covered in hives. I went to the emergency
room and was given Benadryl and Prednisone. After
a few hours I was sent home. The next day,
December 4, I was back the hives had intensified,
were extremely red and angry and covered me from
head to toe with my lips and face frighteningly
bloated and swollen. I was immediately hooked up
to an IV and given Medrol, Tagamet and more
Benadryl. I was a nervous wreck when I arrived
with blood pressure of 141/99, before I was
hooked up to any meds my blood pressure suddenly
plummeted to 102/60. At that point was when they
added the Tagamet to the IV.
Nothing they
gave me would stop the itching. I cannot take
Vistaril, so there were no other options. After
five hours and blood pressure stabilized, I was
sent home. I was told it could take any where
from 2 days to 2 weeks for my body to stop
reacting to the Bactrim.
Today is the
4th day on steroids and antihistamines. I am a
little less puffy and the itching is gone. I have
no appetite and still feel very odd.
Glynis
P.
SULFAMETHOXAZOLE/TMP
DS: 11 December 2007
Brian,
I am a 41
year old, HIV+ but otherwise healthy male who
recently sought ER treatment for a rather large,
rapidly developing abscess on my left buttocks.
The abscess was incised and drained and I was
prescribed
sulfamethoxazole/tmp
ds at a dose of 1 tablet twice a day for 10 days.
When I returned to the ER for wound follow-up and
packing/dressing changing, I was informed that
the culture taken during my initial visit to the
ER came back positive for CA-MRSA sensitive
</= 10. I was instructed to continue my
sulfamethoxazole/tmp ds and was also told I could
remove the packing in two days. I am now in my
5th day of the antimicrobial regimen of
sulfamethoxazole/tmp ds and the infection is
responding well with little
evidence of
puss in the drainage and a shrinking are of
cellulitis around the abscess. I have had no
noticeable side-effects from the
sulfamethoxazole/tmp ds and I thought it was
important to share my positive experience with
the medication. Now you may choose not to include
this email with the many complaints you receive
as it does not readily support a sense of
sensationalism that is apparent in the emails you
do list. I think if you do not reflect an
accurate accounting of the many people who
benefit from treatment with sulfamethoxazole/tmp
ds without any negative side-effects would be
irresponsible journalism, though to report both
the negative and positive stories might not sell
as many newspapers or attract the same number of
Web hits to your Website.
Regards,
John
D, Bronx, NY
BACTRIM:
12 December 2007
I was
recently given Bactrim for Sinusitis on 12/05/07,
which is when I began taking Bactrim, 2X's per
day for 10 days. Well I stopped taking it
yesterday morning because two days into taking
this medicine, all of my viral/sinus symptoms
were more than exacerbated: they were 10 fold and
then some. I began having body aches on Friday
11/7 through Tuesday 11/11. I still have some
body ackes today but much less.
My sinusitis
turned into: constant frontal sinus pain; extreme
post nasal drip; congestion; tiredness; extreme
stomach pain; constant sneezing; some blurred
vision; nausea; middle and lower back aches; and
extreme sharp shooting pain on the top left side
of my head, which have just subsided today.
For the next
couple of weeks I will be eating mostly soups,
detoxing teas and avoiding dairy and wheat/gluten
to cleanse my body entirely. I feel so toxic
right now.
The week
before they gave me the Bactrim, I was taking the
Z-Pack and that did help but it left muscous
blockage in my front sinus causing extreme
pressure in my head, to the point of interefering
with driving.
THANKS SO
MUCH FOR THIS WEBSITE.
Sherry
P.
BACTRIM:
3 January 2008
Hi Brian:
I took one
double dose of Bactrim in late September 2007 and
still experience shortness of breath, insomnia,
chest pain and angina over 3 months later. I was
prescribed Bactrim by a doc in the box (an
express clinic doctor) for a minor skin infection
(not MHRSA). Weeks later I found out the
prescribing of this drug is become quite popular
with well-meaning (albeit ill-informed)
physicians in America who consider it a benefit
in treating MRSHA victims. I only took one pill,
yet I still suffer to this day with persistent
angina and fatigue. I am sure the drug did some
internal damage and it may never clear up. I am
54 years old, and was in great health before this
. I immediately suspected the drug was causing my
heart and chest problems along with the dreaded
flu-like symptoms which forced me home from work
with twelve hours after I took the drug (like
many others I felt I was having a heart attack).
I am usually very cautious about medications, but
wish I had researched it first before injuring
myself. I should have been more alert especially
since my wife had the rare nerve leg pain caused
by Lipitor several years ago which led her down a
futile chase to determine if she had a blood
clot. Three statin pills did her in, but it only
took one Bactrim to wipe me out. I can only
shudder to think of people who took hundreds or
thousands of these pills. No doubt countless
people have died as a result of this horrible
drug and millions more permanently damaged. I
especially feel bad for the young victims who
were injured and killed by this drug.
The Bactrim
fiasco makes you wonder about the fragility of
the human race, but nothing much surprises me
anymore as greed and power supersedes common
sense.
After all,
in 1902 Thomas Edison electrocuted Topsy the
elephant while trying to promote the superiority
of his DC over Tesla and Westinghouse s AC. And
again in 1962 a young UCLA doctor (ok&a
shrink) killed a zoo elephant named Tusko with a
massive overdose of LSD. Small wonder modern
scientists came up with Bactrim!
Thanks for
your support,
Russell
S, Texas
BACTRIM:
4 January 2008
Over the
holidays, I developed a sinus infection. The
doctor prescribed Bactrim, a "sulpha"
antibiotic. I know all drugs have side effects,
some serious, but I had no idea of Bactrim's bad
history so I took the prescripton. My infection
seemed to go away, yet I developed some really
weird problems with forgetfulness and fatigue I
attributed to being ill or stressed out or
depressed. I thought it must have been a really
serious infection to have affected me this way.
Sure enough, the infection seemed to reappear
about a week or two later, a different doctor
prescribed a longer course of the same drug.
After I
started taking the meds, I became extremely
tired, which I attributed to the medication.
Several days into treatment, I became even more
tired and slept for hours and hours on a Sunday
afternoon. That evening I had extreme nauseau and
the worst headache I've ever had. Nothing seemed
to relieve it. I threw up several times. I felt
really wierd, like I had food poisoning or that
awful feeling one has when one has had too much
to drink (poisoning, too). A terrible
uncomfortable rash developed, and my lymph glands
were swollen. It was really wierd. My temp seemed
to go up and down, but I didn't have a temp. It
was like my system was fighting something off. I
couldn't keep down liquids.
Scared, I
called the local pharmacy just to check if I was
having a bad drug interaction, maybe the new
sinus medication was bothering me. After hearing
my symptoms, the pharmacist told me to
immediately stop taking the Bactrim, that many
people including herself, have had these
symptoms. I stopped taking it and within several
hours actually felt as though I "turned the
corner" i.e. started winning against
whatever it was I was fighting rather than just
struggling with it. It was a noticeable change,
but still it took me several days to recover.
While it was
leaving my system, I still couldn't concentrate
to read, and ended up laying in bed for two days,
really out of it. Thank God, my child was at her
dad's house. Each day, though, I felt markedly
better. I'm still having trouble with the rash,
but I don't think the stuff is out of my system
yet. I decided to go to my doctor, to make sure
this is documented in case there are any other
side effects down the road.
Susan
B.
BACTRIM:
5 January 2008
I had very
good luck with this product and feel you have
shown only one side of an issue- side effects
stop the drug! That would be the case with any
drug I take- sometimes we have no choice as we
need to trust our doctors and look at scare
tactic people like yourself and ask our doctor
what his feelings are on a drug- there are more
good things to say about this product than bad-
however the bad gets the most attention- scare
writing-
Ron
S.
BACTRIM:
11 January 2008
Mr. Deer,
I had what
was presumed Bronchitis and was given a 20
regimen of generic Bactrim DS. The first few days
went by without a problem, and then all the
sudden I started having symptoms just like one of
your readers posted from Eureka California! That
is, fever, fatigue, lower back pain and a body
covering rash. My fever would always go away in
the morning and return shortly after I took the
Bactrim. At first I didn't think much of it since
I was told by my pharmacist that there were no
side effects besides dehydration (and boy was I
dehydrated). I soon caught on and stopped taking
the pills. That same day I noticed a red splotchy
rash that covered my entire body.
So I did
what any informed self diagnosing person does and
went and looked on the Internet for solutions. To
my surprise, there are many people who have had
very similar reactions. It seems to me that the
medical field is becoming to complacent with
prescribing drugs and not properly informing
their consumers. I am very angry and the pharmacy
and will write them a letter. Just wanted to
share my experience and urge caution to others
when taking this drug, since my cause could be
considered mild compared to some.
Brian
P, Tucson, AZ
BACTRIM:
17 January 2008
Hello, and
thank you for publishing this information - a
great service to consumers.
I found this
while my husband was upstairs violently throwing
up at 3 in the am after complaining about
headaches, neckaches and intestinal troubles all
day. He is on day 19 of a 30 day dose of Bactrim
for a prostate infection. He's never been sicker.
He wouldn't here of the emergency room....two
months ago I had a slight UTI and was put on
Bactrim, 10 days into it I ended up in the
emergency room with hives that covered my entire
body, including face, eyes, and it was beginning
to climb into my mouth. I've never had allergies
before. Was put on prednisone and hydrocortisone
shots.
I promptly
pitched the remaining dose of my husband's
bactrim, will call the doc today. The stuff needs
to be removed from the market or at least
patients need to be warned to be watchful for any
symptoms. I'm telling the doc about this site and
recommending he's more careful with distribution.
Thank you!!!
Kreg
M.
SMZ-TMP
DS: 19 January 2008
Dear Brian,
I am a 19
year old female who started taking this
medication today (I am a vegetarian who only eats
organic food and works out daily). It was given
to me because I developed a boil on my inner
thigh and I was told that if not treated a staph
infection could arise from the boil. The first
pill seemed fine and I even felt a little bit
better after taking it.I drank as much water as I
could ingest without self harm. But it was the
second pill that sent up red flags. I did get
dizzy and nauseas like it said would happen but I
also got very jittery and anxious . I couldn't
stop moving and I would catch myself sctratching
my skin or attempting to grind my teeth over and
over. Then I noticed intense pain in my hips and
in my knees. After the pain I started to shake
uncontrollably and I as though I was in a
refrigerator even though my house was almost 80
degrees. I also started to feel intense stomach
cramps. My mother said it could just be from me
having my period, but I know my body all to well
to ignore what was happening. I took the second
pill at 8:30 p.m. and it is now almost 12. I am
very tired but cannot seem to fall asleep, I
suppose it is the insomnia setting in. I'm sure
I'll wait the night out to see what else happens.
All my life I have been on antibiotics some of
the strongest one's ever made, but nothing I have
ever taken has been as intense as these pills. I
hope people research and read before they just
take what their doctor gives them because it
might be the one thing that will save them from
the experience that every person on this website
had to go through.
One thing I
found extremely interesting is that when I
received my medication it did not come with its'
usual list of Side effects or allergic reactions.
C.A.
Oceanside, CA
SMZ/TMP
DS: 20 January 2008
Well, I too
have been taking this medication for about a
month now. I am prescribed this because I was
diagnosed with Hydradenitis Supprativa. A
condition that's pretty odd and incurable. My
doctor said that there's not any real medicine
that will actually help, but Bactrim might keep
it stable. I never take med's ever until this and
finding out that I have to take Bactrim for the
rest of my life worries me. I started noticing
that I have been really itchy and my legs and
buttocks have a rash that is present every so
often. I'm not sure what I should do at this
point. I think I may need to find another doctor,
because when I told the doctor about the rash
like symptoms she stated that it's probably from
the soap or laundry detergent I use!! I thought
well I do change soaps often, maybe thats it even
though I have not encountered this before. Never
did she mention that it could be from the
medicine. I wish I would've looked at your site
before I went in but now I know that I am not
crazy and it s not from my soap.
Melissa
Z.
BACTRIM:
21 January 2008
My
dermatologist has had me on bactrin for 10years
now, for acne. He recently took me off it. a
couple weeks after being off it, my tongue turned
completely white and was swelling up and
hurting..its 3 months later since ive been off
the bactrin and my tongue has gotten worse! its
entirely white going down the back of my throat
and its swelled and hurting! i told my
dermatologist this and hes referring me to a
specialist in philadelphia, im in scranton and
have no car and cant afford a bus..hes being
completely disregarding of me as his patient of
10yrs and saying theres no more he can do....
marc.
BACTRIM:
24 January 2008
My daughter
began on Bactrim for MRSA along with another
anti-biotic, several days into the regimen she
started itching, she had a red rash and was stiff
in her back and such. She quit the one
anti-biotic because it was started the latest,
but it took a few days before she had relief from
the rash and itching. She recently began to take
Bactrim for a sinus infection and within just a
few hours her face was blood red, very hot to
touch, she developed a rash from head to waist,
her lips began to swell and her nose began to
swell, by less than an hour later her whole face
was swollen. I called the pharmacist and they
recommended Benadryl and said if her tongue began
to swell or she had trouble breathing to go to
the emergency room for IV Benadryl. I am
wondering if she is allergic to Bactrim, would
she be allergic to all Sulfa drugs? If you know
I'd like to know so she can make sure to list
that in her medical history. Thank you for
posting this sight.
Concerned
mom in WV
BACTRIM
DS: 24 January 2008
On the 18th
of Jan. 2008 I was prescribed Bactrim DS. I took
one pill at prior to going to going to bed. I
awoke at 6 a.m. with the worst itch on penis, the
head and shaft had a red burning rash on it. I
was terrified. I looked online and found your
site, which had many prior accounts similar to
mine and I immediately stopped the drug. I still
have a little burning on the skin today. This
drug is horrid. Please to anyone out there DO NOT
TAKE THIS DRUG . I cannot believe that only one
pill could do that. Thank you again Brian for the
site and the information.
Jeff
R, Michigan
SULFAMETH/TRIMETHOPRIM:
1 February 2008
I cannot
thank you enough for your information on this
drug!!! I was prescribed sulfameth/trimethoprim
for a UTI, I came down with side effects that
were not listed on the paperwork. I talked with
the pharmacist and my doctor, both told me it was
not from the medicine. What I experienced was
such severe cramps and pain in the back of my
legs that I could not even sit down. The day
after I quit taking them,(after reading your
site) The symptoms dissappeared. I don't know if
the doctors in the U.S. are in denial, but I am
printing some of your letters out and bringing
them to my M.D. today!! I am mad as heck.
Amy
P
SMZ/TMP
800-160: 1 February 2008
hi my name
is tony and i have been taking smz/tmp ds 800-160
for over a week which my doctor gave me for a
uti.i have been taking it 2 times a day and i
feel even worse now then i first started.i have
headaces and back pain i also have real bad
stomach pains and i also feel so weak all the
time. i have 4 pills left and i am not going to
take them anymore.and for the person the said
that his doctor did not him what the side affects
would be i agree with him .because my doctor did
not tell me thanks tony from east boston mass
SEPTRA:
3 February 2008
Hi,
I have been
having severe problems since I have been on
Septra. I was just looking around some sites and
ran across this one. I was treated for a UTI with
Septra. Well, I have been on it 3 days and now my
mouth and throat are swollen, I can't even drink
water without being in pain.My speech is impaired
by my swollen , welted up tongue. I wasn't aware
of any allergies before, but I assume I am
allergic to this drug. I am just in a lot of pain
and discomfort and would like to know if there is
anything I could do about it...It is Sunday, so
tomorrow I am going to a doctor, but seriously,
why do they still give this drug out if there are
so many side effects? I am absolutely miserable!!
APO
SULFATRIM DS: 8 February 2008
I started
taking this pill for bladder infection which I
started on Wednesday, today is Friday, 2 days
ago, twice during the day. I was shaking like a
leaf the second day, couldn't understand what
that was, last night I was in the bathroom every
hour since 2 the morning with diahrea, (running
water) all night and I'm so weak and my stomach
feels like it's going to explode, my ass, is
burning like crazy and terrified to go to
the
bathroom, I call the Wabano center and they said
they can't a thing about it, I am not going to
take the last pill tonight as I don't feel like
being in the bathroom all night.
Kunnuk
BACTRIM:
12 February 2008
Hi,
I took my 80
yr old mother to the emergency room on Wed
2/6/08, she had very severe abdominal pain, and
was bleeding heavily in the urine. The doctors
diagnosed her with a elevated UTI infection. She
was give Levaquin intraveneously, and sent home
to take Bactrim and Pyridium.
Well she
started the Bactrim the next day, and I notice
her mouth getting slightly swollen, but we didnt
pay too much attention to that, by Saturday
morning her mouth was swollen, and burning... I
called the pharmacist who in turn advised me t o
call the emergency room and find out, ... I was
instructed to take her back to the emergency
room, and I did, the doctor changed her
antibiotic to Myopid...and said that if her
throat or tongue gets swollen to bring her right
back.
Well, her
mouth is in a terrible burning pain, where she
cant even sip water ...thats how much it hurts...
Sylvia
D.
BACTRIM:
22 February 2008
Dear Brian,
this week I had an intestinal infection, lots of
diarrhea, vomiting and cramps, I went to the
hospital, (one of the best hospitals in Quito)
and after hydrating me they prescribed Bactrim
Forte. The second day I took it I felt like I was
dying. My legs were trembling, my head was like
allusinating, my lips were trembling, I felt like
I wanted to cry and I thought I was going to
faint. I checked with a doctor at the university
where i work and he checked the side effects and
he said, yes, this medicine causes headache and
fatigue.
I have been
in bed all day. Before taking bactrim forte I was
walking around fine. Now I am extremely week.
After reading your web site page I have decided
to stop taking it.
When I was
very young for any infection I had I was always
prescribed bactrim forte, with similar side
effects. Now I am 52 years old and will not take
this medicine. Particularly after reading your
web site information. I am glad I was able to
find your site when I tried to research what
bactrim forte is.
Maria
B, Quito, Ecuador
BACTRIM
DS: 1 March 2008
Hi i was
just reading you page the other day because i
wanted to know if bactrim ds could be mixed with
alcohol because it didnt say anything on the box.
i had aready taken one tablet t 5.30 pm while
reading your site and as i was on it my hands
started shaking so i got off the computer and lay
down where i got worse and i wasweating and hot
but freezing cold and had blankets on in 40
degree weather. my boyfirend then came home at
6pm and found me on the floor with a dark purple
red face. he rushed me to the after hours doctor
where i had a fever of 39 degrees (and i was
perfectly normal before) and then took some blood
of mine to see if anything else was causing it
(wch it wasnt) by then it was 8pm i
couldntstandup with outfainting. every time i
even sat up my blood pressure went 75 to 95 and i
would faint. I was then sent home at 10pm wen
they were sure i didnt have meningacocle and gave
me paracetamoland clarentine. I was stuill
feverish the next day and very swollen and red
all over my body so i wen to the doctors who
believed it was the bactrium and that i could be
allergic to he sulfuir in it. she perscribed me
with phenergan (to stop swellng) and and kind of
antibiotic i have had before that wouldnt make me
sick =) its been two days since then and i am
almost btter. still red though =( i hate bactrim
ds.
Jess
M.
SEPTRA:
8 March 2008
Deer Brian,
I am 15
years old and was prescribed Septra antibiotic
exactly one week ago for bronchitis. I had 14
pills and I took them twice a day. After the
first day of taking this antibiotic I had a high
fever of 104, severe headaches, and no appetite
at all. I drank plenty of water because I had all
flu related symptoms, vomiting anything I ate or
drank even if it was just water. I got about 2
hours of sleep each night. I was very weak. I
felt like I was going to die. I missed 6 days of
school. By Thursday morning-night was the worst I
only had 3 more pills left to take. I had no idea
it was the medication that was supposed to be
helping me, that was making me feel so awful.
Doctors said I probably just had the flu and I
should continue taking the rest of the
antibiotics. I stayed up all night, coughing,
vomiting, shaking with a swollen face, and glands
in my neck and head that were also swollen.
Friday finally fell asleep at midnight, which I
havent been able to do all week. But sadly
I woke up at 2am and could not fall back asleep
because of all the discomfort and pain I was in.
So I got up and took my second last pill. ALL of
Friday I felt terrible. I came to the conclusion
that the doctors were wrong and I was allergic to
this medicine. Later that day after I
vomited several times I called my mom at work to
take me to the hospital because I was having
trouble breathing and couldnt stop throwing
up. I also had red marks all under my eyes. It
looked like some kind of rash. My eyes were
burning. I went to the hospital and the nurse
took my temperature it was 104 and rising. I
didnt feel like I had a fever though. I
guess I was just so used to it because I have had
one for the past 6 days. She gave me 3 Advil, but
my fever still did not go down for another 2
hours. My temperature was then around 103.7. I
layed in a hospital bed waiting for the doctor to
come check on me. He thoroughly examined me,
asked lots of questions, and did a mono test, a
chest and sinus xray. He was a much better doctor
then the one who proscribed me Septra at the
walk-in clinic. The Mono test was negative. The
X-rays showed I had no sign at all of infection
in either my lungs or sinus. He came to the
conclusion I had a virus, I had the common cold.
He said I probably wasnt allergic to
Septra. He said all the symptoms I had could have
been a mix of the flu or the common cold. So I
went home. I did not take the last pill. Friday
Night I broke out into a rash that covers about
90% of my body. Red, Itchy, burning bumps
everywhere, they have stopped me from sleeping. I
knew this was an allergic reaction to the Septra
but the doctors denied it having anything to do
with the drug even though both my mom and brother
are both severely allergic to this medicine as
well. It is now Saturday morning. Is it just
coincidence that when I stop taking Septra half
of all my symptoms go away? I guess thats
what these doctors think. Brian, I was very
scared I was going to die. I have never felt this
sick in my life. But what I found most disturbing
about this whole experience is that the doctor,
who prescribed this medicine for Bronchitis, had
no proof I had this disease. He did not do any
tests to see if I even had an infection. It was a
blind guess by a licensed doctor. It turns out
all I had was a cold. How is it that these
Doctors can give out such a harmful
life-threatening drug? Im sure for some
people the drug has been successful. But the harm
this drug does outweighs the good it does by far.
I still feel terrible. It is beginning of march
break and I cannot leave the house because
Im trying to recover. I will not be going
to parties, visiting friends or traveling
anywhere. Im somewhat depressed. This
Medicine was extremely harmful to me. I
dont want to think about what it could do
to small children or the elderly, or anyone with
a weakened immune system. I think this medicine
should be taken off the market or at least,
controlled and only prescribed if there is actual
proof there is an infection. I am so confused as
to why the doctors would deny my allergic
reaction to this drug. I think they are trying to
cover up the fact that this drug doesnt
help people, its harms them, can even kill them.
Doctors who prescribe the medicine without
sufficient reason should be sued and have there
medical license taken away. Doctors should not be
giving out drugs to make people more unhealthy
then they already are. I would have been better
off not going to the Doctor at all.
Thank you
for Listening.
Erica
H.
BACTRIM:
17 March 2008
I just
wanted to add to the list of bad experiences with
Bactrim. I had a staph infection and visited my
doctor who prescribed Bactrim.
At the time
I also had the flu and was running a fever with
headache, aching muscles, and a sore throat.
Later that day I took my first pill. My fever
spiked to 104 degrees and I couldn't get out of
bed. This went on for nearly 5 days. My eyes were
bloodshot as well.
When the
staph infection healed, I stopped taking the drug
and felt better within a day or two. I went on
vacation for a week and when I came home I found
the bottle of remaining Bactrim pills sitting on
the counter. Thinking I'd be the good patient I
went to finish the container and took one pill
before I went to bed.
Within 15
minutes I had broken out in severe hives all over
my body. I was itchy and hot. I tried laying in
bed but i wasn't able to keep still. I stayed
there for about half an hour and got so hot that
I had to get up to go splash water on my face.
When I got to the bathroom what I saw scared me
to death. My entire body was swollen and red. But
that wasn't the worst part. The irises of my eyes
were blood red, so dark that I looked like I was
in a horror movie.
I freaked
out and ran a bath of cold water and submerged my
whole body in it. I was burning up and was having
a hard time seeing anything. I laid there for
what seemed like hours before I felt I was able
to get up without passing out. I walked to the
bedroom and tried to go back to bed.
I slept for
a few hours and was still terribly itchy, hot,
and sweating profusely. When I woke the next
morning I was still extremely red. My eyes
weren't as red as they were the night before, but
now everything I looked at had a haze surrounding
it.
I visited my
doctor that same day and she said it had been an
allergic reaction and that I should have called
911 immediately. The only reason I hadn't is
because took the pills twice a day for a week
without that type of reaction. Only afterwards
did I realize that the fever I had at first
wasn't the flu, but my body reacting to the
Bactrim. My doctor told me that allergic
reactions to medicine are always worse the second
time around.
It took me
nearly two weeks to get my vision back to normal
and I continued to have itchy rashes throughout
that entire time. Things are back to normal now,
nearly two months later, but Bactrim taught me a
very important lesson. Don't let your Doctor
prescribe something to you until you've
researched it on your own. One Google of Bactrim
would have kept me far away from the drug.
Dane
T, Houston, TX
BACTRIM:
22 March 2008
Brian,
I have been
reading on your website and would like to tell
you about our experience with Bactrim.
History: One
month and one week ago, my mom developed a small
red bump on her index finger just above her
cuticle. Within the hour it had tripled in size.
Her brother is a family practioner, so showed him
the bump and he was almost certain it was Staph.
So he perscribed Bactrim. She took it for two
days and started feeling flu like symptoms, not
very sever, such as fever, minor aching, stomach
and head ache. On the ninth day of the medication
she developed a rash all over her body...severe
itching and burning. The next day she went to the
ER for severe pains in her abdomen and the bottom
of her feet. They gave her a prednisone shot and
she went back home and slept for 3 hrs. When she
woke up she went back to the ER with the same
symptoms except more severe. My uncle finally
admitted her into the hospital to do some test
and hook her up to an IV. The next 7 days
combination of pain "twice as bad as
childbirth with no epidural," drugs, no
eating, and more tests than we could count.
Morphine didn't work so the only thing that made
a dent in the severe pain, yet didn't stop it,
was 4 hour injections of 2 mg dilauted. After the
7 days of tests we figured out that she was a
very health person, there was nothing wrong with
her. On the eighth day she was finally able to
take the dilauted orally and we came home. After
about a week, she switched from dilauted to
tylox.
Present: The
nights are generally horrible. Pain in feet,
hands stomach, calves, knees, and it switches its
location every time it surfaces. The pain worsens
considerably at night. The pain she describes as
burning and also sharp needle like pains. Queesy
stomach pretty much continually. Shortness of
breath. EXTREME weakness, for example she
couldn't even pick up a 12 oz coca cola can
without dropping it. Tingling all over,
especially when she walks in her feet.
Today is one
month and one day after the sign of the bump and
we are wondering if this is ever going to get
better. It has improved but seems to be at a
standstill now. We also want to know if this can
lead to any long term damage???? This is the
worst thing we have ever seen and it has changed
our opinions on medication forever. Please let me
know if you have any insight on what we might be
going through!!! Can you offer any advice?
Thanks,
Anna
SEPTRIN:
2 April 2008
Hi Brian
I was given
Septrin in liquid form when I was about 7 (so
circa 1981) and remember it vividly. I wasn't a
terribly sicky child but I projectile vomited
this medication back up almost instantaneously
with such a tremendous force that it covered my
entire wall (and have never been as violently
sick again since then!), so given some of the
stories I have stumbled across on your site, I
consider myself to be very lucky that my body
reacted to it so quickly!
Hope this
helps with your research/ campaign.
Best regards
Claire
C.
SULFAMETHOXAZOLE
& TRIMETHOPRIM: 7 April 2008
I wanted to
add my experience with this medication. I was
given this for the treatment of an ear infection.
I started taking it on a Wednesday and by
Thursday was feeling very weak, but thought this
was due to the infection. My Friday, I was having
major panic attacks! They continued through the
weekend and I was wanting to die! My heart was
racing, I could not eat, I was pacing the floor,
I had a burning sensation on my neck, I was cold
and shaking, was very weak, my lower back hurt,
my eyes hurt, and my balance was way off. When I
was finally able to see the doctor again on
Monday, I was told to stop taking the medication.
I ended up taking 10 doses which was half of the
entire mediation. I don't know when I will return
to normal. Why don't they tell us all of the
adverse reactions to this medication? This should
be taken off the market. It is dangerous!!! What
can we do to get this medication out of our
bodies?
Linda
W.
BACTRIM
DS 800-160: 12 April 2008
The first
time I was prescribed this medication, I
experienced high fever accompanied by chills to
the point that I couldn't keep my teeth from
chattering. I was also shaking uncontrollably and
experiencing excruciating pain in all my joints.
It felt as if every nerve in my body was sending
pain signals to my brain. The pain encompassed my
entire body...I felt as if I were dying. My eyes
were bloodshot red, my neck and back were stiff
and painful. I thought that, along with my UTI, I
must have contracted some bug at the doctor's
office.
The second
time I was prescribed this medication, I
experienced all the same symptoms. My husband
immediately put two and tow together and I had to
agree that it was the only answer. Both of these
prescriptions were for UTI, first one in Feb and
the second one in Mar of 2008.
My question
is this, with all the information available on
this medication, why is it still being prescribed
by the medical professionals?
Is it really
all about the money?
Ali,
South Carolina
SEPTRA:
15 April 2008
I have
recently had a severe reaction to septra which
landed me in the ICU of the Burn Unit of the
Medical College of Virginia. My reaction was
diognosed as Steven Johnson Syndrome, which
developed into TENS.
I was in the
ICU for one week before coming home.
Kathy
& RIcky S, West Point, VA
BACTRIM:
15 April 2008
I am
responding to your website and would like to give
you feedback about Bactrim. I was diagnosed with
a MRSA staph infection. I was prescribed Bactrim
as I am allergic to PCN. My doctor also informed
me that Bactrim would be the best antibiotic to
utilize because of it's strength...little did I
know.
Almost
immediately I had severe headaches; didn't think
it was the drugs...thought it was a tension
headache. I then started getting cold/hot
flashes, hives, difficulty breathing and severe
back pain. Again, didn't think it was the
Bactrim.
On day 8, I
forgot to take my medicine and had felt it was a
good idea to do some research. When I read about
the nasty side-effects and possible allergies one
could have, I contacted my doctor.
My doctor
was also in denial about my allergy and dismissed
me indicating that she felt that my staph
infection may have caused SEPSIS (isn't that a
relief - not). She told me to resume taking the
Bactrim.
My mistake
was listening to her as about 1.5 hours after
taking the drugs I was rushed to the emergency
room because I had severe hives, swollen face,
tongue, and lips as well as difficulty breathing.
The ER doctor didn't confirm that the Bactrim was
making me ill; but he wasn't convinced.
He wound up
prescribing me a EPI pen and suggested that I see
an allergist under the premise that if I am
allergic to PCN and Bactrim that I would be
limited on antibiotics that I could take.
I have also
been given steroids and a benydryl to reduce
swelling and itching. Thankfully I am still alive
to tell my tale. Stay away from Bactrim it has
proven to be poison to me. What is more alarming
is that MD's still are in denial about how toxic
this drug is...
Thanks for
listening.
Dana
M.
BACTRIM:
16 April 2008
Hi, I want
to say thanks for you website first. It, among
with a few others are what convinced me that I
was having an allergic reaction to the Bactrim
and made me decide to go to the er.
I was
prescribed Bactrim at a Quick-Care facility when
a tattoo on my foot got infected. I took two
pills on Sat and one on Sun morning. I lost my
appetite and was nauseous and couldn't get to
sleep and when I did sleep I had horrible
nightmares. I also had a nagging headache behind
my eyes that wouldn't go away and felt very
anxious. I didn't worry too much until these
reddish/purple dots appeared first on my foot
then moved to the other foot and up both legs and
eventually onto my butt and back.
Thats when I
started researching and found out about the
horrible side effects of this drug. I went to the
er and when they did blood tests they found that
my platelet count was 5000. Normal ranges are
around 140000 to 450000. Platelets are what clots
your blood and without them you won't stop
bleeding if you are cut and can have spontaneous
bleeding (which is what the red dots were). It
can be very serious and lead to brain hemmorhage
and death if its not treated.
The hospital
admitted me and gave me large doses of iv
steroids and immunoglobulin. This raised my
counts to 19000 and they let me go home as long
as I promised to come in every day to get my
blood checked and to see my specialist again in
two days. This is my second night home and my
platelet counts do seem to be rising but I have
to be very careful b/c my number are still
dangerously low and I can't work or go to
college. I am also uninsured so this $4
antibiotic has ended up costing me thousands of
dollars and much pain and worry. I've learned my
lesson though, research any drug before you take
it!! Even after I'd researched it and told the er
doc what I thought it was, she rejected the idea
b/c "we use bactrim all the time". The
specialist figured it out though. This drug
should be taken off the market or at least come
with some sort of warning in the package!!
Maggie
M.
BACTRIM:
16 April 2008
yesterday I
went to the doctors office for a bladder
infection and he prescribed a medication name
bactrim, to be taken for three days, twice a day.
I took one pill about 7 pm and by 10 pm I had to
be rushed to the hospital. I started feeling
dizzy, lightheaded and one side of my face felt
completely numb. After running all kinds of
tests, cat scans , lab work, etc. The er doctor
concludes he could not find anything. I had
suspected in the beginning that I was having a
terrible allergic reaction to the bactrim, being
there wasn't anything wrong with me before I took
the medicine. Now the left side of my ear is
completely deaf. I have never had any promblems
at all with my hearing and I am 54 years old. I
am feeling awful strange. I don't know what is
wrong with these doctors. They are not doing
their homework or something. They are not
researching these dangerously, potential fatal
drugs they are prescribing for their patients.
The er doctor told me to keep taking the
medication to clear up my infection and I told
him in no uncertain terms would I continue that
medicine. I do not know what his problem was but
he must of thuoght I was a fool. Normally I
research my own medicines before I take them, but
last night my internet service was out so I just
decided to take the first pill instead and I am
sorry now.I am saying all this to let the readers
know to be careful with all these medecines these
doctors are prescribing for us. It is my sincere
belief that they don't give a hoot what happens
as long as it do not happen to them.I made up in
my mind this is my life and I am going to be the
one in control of it.So everybody just be
careful.
Geraldine
F.
SEPTRA
DS: 16 April 2008
Hello Brian,
my name is
dale, and i live in nashville tn. in january 2008
i went to the dr. for a sinus infection and was
prescribed septra ds and i got the generic drug
smz/tmp 800 mg, 2 days later i was covered in
hives, i looked like someone droped me on abed of
nails.
needless to
say that i have had this outbreak before, so i
did not take the next dose, the dose was suposed
to be at 5:00 pm. was instructed by the dr. that
perscribed the septra ds. to take benadryl and do
not take no more of the septra ds, smz/tmp 800
mg.
at aprox.
9:00 pm 4 hrs later i was uncontrollably
slobbering from the mouth and had a lot of
pressure at my esophagus, like a severe case of
heartburn. then at 2:00 am jan 31,2008 i was on
my way to the emergency room with slight pain
under my left arm and some numbness at the top of
the left arm, and no strength in the left arm, i
suspected a heart attack! at the er at about 2:30
am blood work was back and cardiac enzymes were
elevated and i was in fact having a heart attack
at the age of 39.
went to
operating room and preped for an angeogram with
dye shot into the heart while i watched the
monitor the heart lit up all black and the
surgeon said to me all arteries are CLEAR AND NOT
BLOCKED!
i asked what
is wrong then and the dr. replied heart is in
good shape, and NOTHING IS WRONG. the dr. said i
had a heart strain now i have high blood pressure
and numbness all over from time to time. the
smz/tmp almost killed me.
the medical
bills are piling up and with no health insurance
the 19,000.00 dr bills will not get paid. i will
loose my lawn business and everything i have
worked hard for the last 7 years i have owned my
own business and will soon loose it because the
side affects are getting worse as days pass.
who do i
turn to , i will soon be in financial desaster
sincerely
Dale
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